We had an amazing turnout with over 50 Wisconsin advocates advocating to 46 Legislators at the Capitol in Madison on September 11, 2025! Topics ranged from discussing our rare disease stories, to advocating for newborn screening (AB 206 / SB 145), to Cole’s Act (AB 173 / SB 203) on regulating copays. As of September 16th, three additional Legislators have signed on! Two of NBS – Rep Udell and Rep Moore Omokunde, and one for Cole’s Act – Rep Sinicki. Below are a few of our favorite photos from the event. Feel free to email us your photos from the event and we will add them to our gallery!
Our first WI Rare Disease Advocacy Day Event!
Thanks to our volunteer photographer, Lori Dahl for the amazing photos!
Speakers and volunteers
Speakers and volunteers
Our Advocacy T-shirts provided by ooShirts.com!
Thanks you to The Welch Group for planning our legislative meet-ups
Representative Fitzgerald speaking to our advocates
Over 50 Advocates visited 46 Legislators
Over 50 Advocates visited 46 Legislators
Over 50 Advocates visited 46 Legislators
Over 50 Advocates visited over 46 Legislator (this view has our amazing photographer!)
Our WI Rare advocacy buttons
Sickle Cell Warriors in action
Refreshing our advocacy skills
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Advocates in action!
Thank you Patients Rising for The Impact Story Formula handout!
Refreshing our advocacy skills before meetings begin
Advocates in action!
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Advocates in action!
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Advocates in action!
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
Refreshing our advocacy skills before meetings begin
