News & Stories – WI Rare

News & Stories

News on Wisconsin policymaking and rare disease topics.

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Tiena Telling Her Rare Story to WI Legislators

StoriesTiena Telling Her Rare Story to WI Legislators

October 22, 2024

The Powerful Companies Driving Local Drugstores Out of Business

NewsThe Powerful Companies Driving Local Drugstores Out of Business

October 19, 2024

September Newsletter

Event NewsSeptember Newsletter

September 20, 2024

StoriesPodcast: Born in the wrong state

September 4, 2024

Mother and baby

NewsNewborn screening: WI Falling behind federal guidelines

September 3, 2024

Would You Like To Be a WI Rare Intern?

StoriesWould You Like To Be a WI Rare Intern?

August 14, 2024

Embracing the Journey: Navigating Angelman Syndrome with Lucia and Lilah

StoriesEmbracing the Journey: Navigating Angelman Syndrome with Lucia and Lilah

July 1, 2024

NewsMay Newsletter

June 6, 2024

Introducing Our Summer Interns

NewsIntroducing Our Summer Interns

May 30, 2024

Final Thoughts From Our Spring Interns

News StoriesFinal Thoughts From Our Spring Interns

May 28, 2024