Rare Disease Advisory Council (RDAC)
While there is not a current bill, establishing an RDAC is regularly discussed. More than 25 states have already enacted RDACs in their states.
For more on RDACs, please see video provided by our friends in Michigan.
Impact to Rare Disease
Having a state RDAC allows for a dedicated group of subject experts to be at the ready to provide important rare disease knowledge to state government bodies as needed.