Link – WI Rare

News & Stories

News on Wisconsin policymaking and rare disease topics.

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Upcoming Events Newsletter

NewsUpcoming Events Newsletter

November 3, 2025

WI Rare Disease Advocacy Day Recap

NewsWI Rare Disease Advocacy Day Recap

September 23, 2025

NewsWI Rare September eBlast

September 10, 2025

WI Rare Disease Patients to Rally for Improved Newborn Screening, Cole’s Act Press Release

Event News UncategorizedWI Rare Disease Patients to Rally for Improved Newborn Screening, Cole’s Act Press Release

September 8, 2025

News StoriesHow Copay Accumulators Affect Patient Access to Medications – PBW Wisconsin Story

August 19, 2025

NewsWI Rare March eBlast

March 27, 2025

Pharmacy Benefit Managers Putting Meds Out of Reach

NewsPharmacy Benefit Managers Putting Meds Out of Reach

December 13, 2024

September Newsletter

Event NewsSeptember Newsletter

September 20, 2024

Mother and baby

NewsNewborn screening: WI Falling behind federal guidelines

September 3, 2024

Would You Like To Be a WI Rare Intern?

StoriesWould You Like To Be a WI Rare Intern?

August 14, 2024