News & Stories – WI Rare

News & Stories

News on Wisconsin policymaking and rare disease topics.

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Newborn Screening in the United States: A Vision for Sustaining and Advancing Excellence

NewsNewborn Screening in the United States: A Vision for Sustaining and Advancing Excellence

May 1, 2025

A Plan to Access Cheap Drugs Backfires, Leaving Patient With $250,000 Bill

NewsA Plan to Access Cheap Drugs Backfires, Leaving Patient With $250,000 Bill

April 22, 2025

NewsWI Rare March eBlast

March 27, 2025

WI Advocates Representing

NewsWI Advocates in Action!

February 20, 2025

Navigating the Genetic Maze 1/30/25 Overview

EventNavigating the Genetic Maze 1/30/25 Overview

January 30, 2025

Pharmacy Benefit Managers Putting Meds Out of Reach

NewsPharmacy Benefit Managers Putting Meds Out of Reach

December 13, 2024

Tiena Telling Her Rare Story to WI Legislators

StoriesTiena Telling Her Rare Story to WI Legislators

October 22, 2024

The Powerful Companies Driving Local Drugstores Out of Business

NewsThe Powerful Companies Driving Local Drugstores Out of Business

October 19, 2024

September Newsletter

Event NewsSeptember Newsletter

September 20, 2024

StoriesPodcast: Born in the wrong state

September 4, 2024