News & Stories – WI Rare

News & Stories

News on Wisconsin policymaking and rare disease topics.

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WI Rare Disease Advocacy Day Recap

NewsWI Rare Disease Advocacy Day Recap

September 23, 2025

WI Rare Disease Advocacy Day Event 2025

Event NewsWI Rare Disease Advocacy Day Event 2025

September 16, 2025

NewsWI Rare September eBlast

September 10, 2025

WI Rare Disease Patients to Rally for Improved Newborn Screening, Cole’s Act Press Release

Event News UncategorizedWI Rare Disease Patients to Rally for Improved Newborn Screening, Cole’s Act Press Release

September 8, 2025

News StoriesHow Copay Accumulators Affect Patient Access to Medications – PBW Wisconsin Story

August 19, 2025

AI + Advocacy: Why We Should Never Give Up Hope on a Diagnosis

News StoriesAI + Advocacy: Why We Should Never Give Up Hope on a Diagnosis

July 23, 2025

Newborn Screening in the United States: A Vision for Sustaining and Advancing Excellence

NewsNewborn Screening in the United States: A Vision for Sustaining and Advancing Excellence

May 1, 2025

A Plan to Access Cheap Drugs Backfires, Leaving Patient With $250,000 Bill

NewsA Plan to Access Cheap Drugs Backfires, Leaving Patient With $250,000 Bill

April 22, 2025

NewsWI Rare March eBlast

March 27, 2025

WI Advocates Representing

NewsWI Advocates in Action!

February 20, 2025