Stories – WI Rare

News & Stories

News on Wisconsin policymaking and rare disease topics.

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News StoriesHow Copay Accumulators Affect Patient Access to Medications – PBW Wisconsin Story

August 19, 2025

AI + Advocacy: Why We Should Never Give Up Hope on a Diagnosis

News StoriesAI + Advocacy: Why We Should Never Give Up Hope on a Diagnosis

July 23, 2025

Tiena Telling Her Rare Story to WI Legislators

StoriesTiena Telling Her Rare Story to WI Legislators

October 22, 2024

StoriesPodcast: Born in the wrong state

September 4, 2024

Would You Like To Be a WI Rare Intern?

StoriesWould You Like To Be a WI Rare Intern?

August 14, 2024

Embracing the Journey: Navigating Angelman Syndrome with Lucia and Lilah

StoriesEmbracing the Journey: Navigating Angelman Syndrome with Lucia and Lilah

July 1, 2024

Final Thoughts From Our Spring Interns

News StoriesFinal Thoughts From Our Spring Interns

May 28, 2024

Cade’s Journey: Living with Prader-Willi Syndrome

StoriesCade’s Journey: Living with Prader-Willi Syndrome

April 11, 2024