News – WI Rare

News & Stories

News on Wisconsin policymaking and rare disease topics.

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News StoriesHow Copay Accumulators Affect Patient Access to Medications – PBW Wisconsin Story

August 19, 2025

AI + Advocacy: Why We Should Never Give Up Hope on a Diagnosis

News StoriesAI + Advocacy: Why We Should Never Give Up Hope on a Diagnosis

July 23, 2025

Newborn Screening in the United States: A Vision for Sustaining and Advancing Excellence

NewsNewborn Screening in the United States: A Vision for Sustaining and Advancing Excellence

May 1, 2025

A Plan to Access Cheap Drugs Backfires, Leaving Patient With $250,000 Bill

NewsA Plan to Access Cheap Drugs Backfires, Leaving Patient With $250,000 Bill

April 22, 2025

NewsWI Rare March eBlast

March 27, 2025

WI Advocates Representing

NewsWI Advocates in Action!

February 20, 2025

Pharmacy Benefit Managers Putting Meds Out of Reach

NewsPharmacy Benefit Managers Putting Meds Out of Reach

December 13, 2024

The Powerful Companies Driving Local Drugstores Out of Business

NewsThe Powerful Companies Driving Local Drugstores Out of Business

October 19, 2024

September Newsletter

Event NewsSeptember Newsletter

September 20, 2024

Mother and baby

NewsNewborn screening: WI Falling behind federal guidelines

September 3, 2024