Health Advocacy: Internship Opportunity!

Are you an initiative-taking student eager to make a real impact? Do you want to gain hands-on experience in health policy and nonprofit advocacy? Join our nonprofit team dedicated to advancing rare disease advocacy in Wisconsin. This internship offers a hands on opportunity to contribute directly to improving the lives of individuals and families affected by rare diseases. Part-time or full semester and summer internships available.

 You gain:

• Broad Exposure: Gain invaluable insights into rare disease advocacy.
• Meaningful Work: Research, write, and conduct basic analysis that directly supports our mission.
• Direct Engagement: Participate in outreach to legislators, agencies, and the broader rare disease community, making your voice heard.
• Skill Development: Hone your verbal and written communication, research, and analytical skills.
• Tech & Social Media Advocacy: Utilize and expand your comfort using technology and social media platforms for advocacy.
• Professional Growth: Receive dedicated coaching and mentorship from your supervisor, fostering your professional development.
• Real-World Impact: Contribute to a cause that truly matters and see the tangible results of your efforts.
• Celebration of Success: Be part of a team that works hard, believes in the power of people, and loves to celebrate achievements!

 Students from a variety of majors are encouraged to apply! (Examples of past intern majors include: social work, statistics, economics, biology, education, public health, and more.)

Don’t miss this chance to ignite your passion and make a tangible impact! Apply today and become a vital part of our mission.

ROLE SUMMARY:
We seek a creative and self-motivated Intern who can work with our team to achieve our organization’s vision and mission dedicated to advancing rare diseases in Wisconsin.

A Wisconsin Rare Disease Alliance Intern (WI Rare Intern) can expect this experience to provide broad exposure to nonprofit business operations. The ideal candidate is a hands-on and eager professional comfortable with verbal and written communication and interested in listening and hearing from and about the rare disease community and broader stakeholders.

This intern will be able to research, write, and conduct basic analysis. Familiarity and comfort with using technology and social media are necessary as is a positive team style. This role requires an initiative-taking individual who can meet deadlines without constant supervision. (There are no micro-managers at WI Rare!) We seek a responsible team member to assist us in building this new organization.

Reports To: President
Term: Semester, renewal up to twice
Status: Part-time
Location: Remote (occasional need to be in Madison, WI at the state capitol)
Classification: Volunteer (with small stipend)

KEY RESULTS:
• Represent WI Rare with a welcoming, supportive, and positive style.
• Actively build partnerships that increase the awareness and support of WI Rare’s work.
• Build community and stakeholder database of rare disease interested parties.
• Making ongoing recommendations for improvements and enhancements.

RESPONSIBILITIES:
A WI Rare Intern will be a valued part of our team and responsible for leading several internal initiatives.

Projects include but are not limited to:
• Leading a state-wide Stories Collection Project.
• Assisting in Patient and Caregiver Rare Disease Recruitment.
• Provide research for the Media Outreach Project (Radio, TV, News, Socials, Websites, etc.)
• Support the Rare Disease Community Project (RDCP) with recruitment and analysis.
• Assist the Communications Manager with social media.
• Contribute to Stakeholder Recruitment.
• Attend hearings on Rare Disease topics, preparing summaries of meetings as needed.
• Aid in various other projects as needed.

QUALIFICATIONS:
• Pursuing a bachelor’s degree or equivalent experience required.
• Strong interpersonal & relationship-building skills.
• Comfortable self-managing in an ever-evolving, fast-paced remote environment.
• Proficient in social media platform management and analytics.
• Excellent written and communication skills.
• Mindfulness and detail conscious.
• Capacity to think creatively and contribute innovative ideas.
• Bilingual or proficiency in multiple languages is a plus. (Spanish preferred)
• Ability to travel if necessary.

CULTURE:
As an organization, we believe in the importance of building a strong and enduring culture where we value and recognize different perspectives. We personally and organizationally pledge to purposefully bring the following core values to our work:

• Demonstrate Servant Leadership in all roles.
• Dedicate continuous efforts to living a culture of Trust.
• Engage with and inspire Innovation.
• Commit actively to achieving Results.
• Act with Honesty and Integrity.
• Foster Diversity and Inclusion within the team, partners, and those we serve.
• Be our true and Authentic selves in what we say and do.

We appreciate your interest in becoming a Wisconsin Rare Intern.

Please fill out the form below and attach your resume for consideration.