Rare Disease Day will be held on February 28th. Do you know of an organization in Wisconsin that is hosting a Rare Disease event? Let us know so that we can promote it!
OPEN THE INVITATION TO ACCESS THE REGISTRATION FORM AT THE BOTTOM OF THE PAGE. You are invited to join us at the Madison State Capitol for our Rare Disease Advocacy Day! Check in will be from 8-9 am. Register: https://wirare.org/capitol-day/
Milwaukee County Zoo Register at the link below! If you have any questions, please email events@rarediseases.org
In honor of our sweet Kora’s heavenly birthdays, Into The Light wants to provide a special annual event for families who have a child (birth-18 years old) living with a rare or complex medical diagnosis. A time where families have an extra way to celebrate their child who has overcome many challenges and continues to...
Help raise the flag about how important copays are for people living with rare disease. (Senate Bill 203) Join WI Rare and fellow advocates at the Wisconsin State Capitol on January 8 for a short, but powerful, press conference highlighting the real impact of copays on our community. Time: 10:00 AM CST Let’s pack the room...
Join us as we partner with Village of Cottage Grove Library and CI Pediatric Therapy Centers for Rare Disease StoryTime! February 26th at 6:30 pm CST
Come visit us in the Student Union on February 27th from 4-6 pm CST to learn more about WI Rare and Rare Disease
Rare Disease Children's Museum Event February 28th 10 am - Noon CST
Zebra Hop IPA at Component Brewing February 28, 2:00 pm CST