Join us!
Rare Disease Advocacy Day at the Capitol
With a new wave of lawmakers taking office, there’s a prime moment to educate them on the complexities of rare diseases, the challenges faced by patients and families, and the importance of advocating for equitable access to care, research funding, and supportive policies. Simultaneously, reminding seasoned legislators of the ongoing struggles within the rare disease community ensures their continued support for vital initiatives.
WI Rare is planning to host a Rare Disease Advocacy Day at the Capitol in Madison, WI and would love for you to join with us September 11, 2025! This is a great opportunity for those who attended our online Advocacy Masterclass to utilize their new skills, as well as all Wisconsin advocates to meet with their elected legislators. This is a prime moment to educate them on the complexities of rare diseases, the challenges faced by patients and families, and the importance of advocating for equitable access to care, research funding, and supportive policies and asking for their support for vital needs.
Our primary topics will include copay and newborn screening bills. You are welcome to bring your own rare disease topics as well.
Please sign up below if you are interested in participating!
