Key Search for Rare Disease by Name
The Genetic and Rare Diseases (GARD) Information Center (English and Spanish)
Undiagnosed Disease Network
Children’s Hospital of WI – Undiagnosed and Rare Disease Program
University of Wisconsin Center for Rare Diseases
University of Wisconsin Undiagnosed Disease Program
WI Rare Disease Alliance Awareness Trifold
WI Rare Copay Social Graphics
WI Rare Advocacy Social Graphics
WI Rare Disease Alliance Publicity Release
Zebra Coloring Pages (8.5×11)
EveryLife Foundation for Rare Disease
National Organization for Rare Diseases (NORD)
Global Genes
National Alliance for Caregivers (Caregiver Guidebook)
Patient Advocates Foundation
Patient Services Inc
The Assistance Fund
HealthWell Foundation
Children’s Wisconsin (Financial Assistance)
NORD’s RareCare Patient Assistance Programs (Financial Assistance, Caregiver Respite, Education)
Orphanet Portal for Rare Diseases and Orphan Drugs
Rare Disease Clinical Trials for Patients
If you know of a resource that should be added to the list above, please share!