Calling All Rare Disease Caregivers: What's Your "Of Course I...?"

Mark your calendars! Rare Disease Day is only a few months away, and in recognition of the incredible work you do every single day, we’re planning something special—but we need your help to make it happen!

We’re putting together a hilarious and heartwarming collection of all the things you do that make others say, “Wait, you do what?”

Think of those everyday, totally unique-to-your-life experiences that start with: “Of course I…”

• “Of course I know the night-time pediatric on-call doctor by their first name.”
• “Of course I check the expiration date on all the G-tube formula… even if I just bought it.”
• “Of Course I found my Rare Mom’s Tribe online.”
• “Of course I have a ‘Hospital Go Bag’ packed at all times, just in case.”

 What are your “Of Course I…” moments? The funny, the relatable, the profoundly true parts of your life as a rare disease caregiver?

 Here’s How to Get Your Ideas on this Mug!

Our community committee will select some of the most relatable “Of Course I…” submissions to create an exclusive, limited-edition 2026 Rare Disease Day Travel Mug! This will be a fun way to celebrate and recognize the incredible, specific things that unite our community.

Don’t miss out! Send us your ideas now: