Rare Disease Day at the Capitol

With a new wave of lawmakers taking office, there’s a prime moment to educate them on the complexities of rare diseases, the challenges faced by patients and families, and the importance of advocating for equitable access to care, research funding, and supportive policies. Simultaneously, reminding seasoned legislators of the ongoing struggles within the rare disease community ensures their continued support for vital initiatives.

WI Rare is planning to host a Rare Disease Day at the Capitol in Madison, WI and would love for you to join with us! (Date to be determined.) This is a great opportunity for those who attended our online Advocacy Masterclass to utilize their new skills, as well as all Wisconsin advocates to meet with their elected legislators. This is a prime moment to educate them on the complexities of rare diseases, the challenges faced by patients and families, and the importance of advocating for equitable access to care, research funding, and supportive policies and asking for their support for vital needs.

Please sign up below if you are interested in participating!