Become a WI Rare Intern


Wisconsin Rare Interns

Reports To: President
Term: Semester, renewal up to twice
Status: Part-time
Location: Remote (occasional need to be in Madison, WI at the state capitol)
Classification: Volunteer (with small stipend)

We seek a creative and self-motivated Intern who can work with our team to achieve our organization’s vision and mission dedicated to advancing rare diseases in Wisconsin.

A Wisconsin Rare Disease Alliance Intern (WI Rare Intern) can expect this experience to provide broad exposure to nonprofit business operations. The ideal candidate is a hands-on and eager professional comfortable with verbal and written communication and interested in listening and hearing from and about the rare disease community and broader stakeholders.

This intern will be able to research, write, and conduct basic analysis. Familiarity and comfort with using technology and social media are necessary as is a positive team style. This role requires an initiative-taking individual who can meet deadlines without constant supervision. (There are no micro-managers at WI Rare!) We seek a responsible team member to assist us in building this new organization.

• Represent WI Rare with a welcoming, supportive, and positive style.
• Actively build partnerships that increase the awareness and support of WI Rare’s work.
• Build community and stakeholder database of rare disease interested parties.
• Making ongoing recommendations for improvements and enhancements.

A WI Rare Intern will be a valued part of our team and responsible for leading several internal initiatives.

Projects include but are not limited to:
• Leading a state-wide Stories Collection Project.
• Assisting in Patient and Caregiver Rare Disease Recruitment.
• Provide research for the Media Outreach Project (Radio, TV, News, Socials, Websites, etc.)
Support the Rare Disease Community Project (RDCP) with recruitment and analysis.
• Assist the Communications Manager with social media.
• Contribute to Stakeholder Recruitment.
Attend hearings on Rare Disease topics, preparing summaries of meetings as needed.
• Aid in various other projects as needed.

• Pursuing a bachelor’s degree or equivalent experience required.
• Strong interpersonal & relationship-building skills.
• Comfortable self-managing in an ever-evolving, fast-paced remote environment.
• Proficient in social media platform management and analytics.
• Excellent written and communication skills.
• Mindfulness and detail conscious.
• Capacity to think creatively and contribute innovative ideas.
• Bilingual or proficiency in multiple languages is a plus. (Spanish preferred)
• Ability to travel if necessary.

As an organization, we believe in the importance of building a strong and enduring culture where we value and recognize different perspectives. We personally and organizationally pledge to purposefully bring the following core values to our work:

• Demonstrate Servant Leadership in all roles.
• Dedicate continuous efforts to living a culture of Trust.
• Engage with and inspire Innovation.
• Commit actively to achieving Results.
• Act with Honesty and Integrity.
• Foster Diversity and Inclusion within the team, partners, and those we serve.
• Be our true and Authentic selves in what we say and do.


Apply Today!

Intern Group

We appreciate your interest in becoming a Wisconsin Rare Intern.

Please fill out the form below and attach your resume for consideration.

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