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X-WR-CALDESC:Events for WI Rare
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UID:6262-1762581600-1762610400@wirare.org
SUMMARY:Living Rare\, Living Stronger in WI
DESCRIPTION:Milwaukee County Zoo \nRegister at the link below! \nIf you have any questions\, please email events@rarediseases.org
URL:https://wirare.org/event/living-rare-living-stronger-in-wi/
LOCATION:Milwaukee County Zoo\, 10001 W Bluemound Rd\, Milwaukee\, WI\, 53226\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251213T170000
DTEND;TZID=America/Chicago:20251213T203000
DTSTAMP:20260414T175035
CREATED:20251027T201446Z
LAST-MODIFIED:20251027T201446Z
UID:6255-1765645200-1765657800@wirare.org
SUMMARY:Dancing In The Light
DESCRIPTION:In honor of our sweet Kora’s heavenly birthdays\, Into The Light wants to provide a special annual event for families who have a child (birth-18 years old) living with a rare or complex medical diagnosis. A time where families have an extra way to celebrate their child who has overcome many challenges and continues to display strength in their everyday life.\n\nA free evening for the whole family full of food\, music\, entertainment\, and “dancing in the light”. To add to the elegant atmosphere\, we would love for everyone attending to dress in their fanciest\, ball-like attire\, but please know this is not required. Although this event is intended for immediate family\, we would love for you to bring along those special people in your lives that would make your family’s evening more precious.\n\nPlease RSVP by December 8th\, 2025 via our website link so we can plan accordingly:
URL:https://wirare.org/event/dancing-in-the-light/
LOCATION:West Creek Event Center\, S7650 State Rd 37\, Eau Claire\, WI\, United States
ORGANIZER;CN="Into the Light":MAILTO:in2tlight@gmail.com
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BEGIN:VEVENT
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DTEND;TZID=America/Chicago:20260108T120000
DTSTAMP:20260414T175035
CREATED:20251230T144331Z
LAST-MODIFIED:20260106T211608Z
UID:6329-1767866400-1767873600@wirare.org
SUMMARY:Copay Press Conference
DESCRIPTION:Help raise the flag about how important copays are for people living with rare disease. (Senate Bill 203) \nJoin WI Rare and fellow advocates at the Wisconsin State Capitol on January 8 for a short\, but powerful\, press conference highlighting the real impact of copays on our community. \nTime: 10:00 AM CST \nLet’s pack the room in solidarity. Copays can affect anyone — so bring your friends\, bring your family\, and show the press just how much this issue matters to us. \nAfter the press conference:\nYou’re invited to continue the conversation at a Rare Disease Meetup at Michelangelo’s Coffee Shop\, just across from the Capitol on State Street. \nRSVP today! \nWe can’t wait to advocate alongside you. Together\, let’s make sure copays count.
URL:https://wirare.org/event/copay-press-conference/
LOCATION:Madison WI State Capitol\, 2 E Main St\, Madison\, WI\, 53702\, United States
CATEGORIES:In-person
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260226T183000
DTEND;TZID=America/Chicago:20260226T193000
DTSTAMP:20260414T175035
CREATED:20260209T221508Z
LAST-MODIFIED:20260220T191830Z
UID:6390-1772130600-1772134200@wirare.org
SUMMARY:Rare Disease StoryTime
DESCRIPTION:Join us as we partner with Village of Cottage Grove Library and CI Pediatric Therapy Centers for Rare Disease StoryTime! February 26th at 6:30 pm CST
URL:https://wirare.org/event/rare-disease-storytime-2/
LOCATION:CI Pediatric Therapy Centers\, 535 Southing Grange Suite 400\, Cottage Grove\, WI\, United States
CATEGORIES:In-person
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260227T160000
DTEND;TZID=America/Chicago:20260227T180000
DTSTAMP:20260414T175035
CREATED:20260209T222602Z
LAST-MODIFIED:20260209T222602Z
UID:6395-1772208000-1772215200@wirare.org
SUMMARY:UW Madison Student Union
DESCRIPTION:Come visit us in the Student Union on February 27th from 4-6 pm CST to learn more about WI Rare and Rare Disease
URL:https://wirare.org/event/uw-madison-student-union/
LOCATION:UW Madison Student Union\, Madison\, WI\, United States
CATEGORIES:In-person
ORGANIZER;CN="WI Rare":MAILTO:anna@wirare.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260228T100000
DTEND;TZID=America/Chicago:20260228T120000
DTSTAMP:20260414T175035
CREATED:20260209T222306Z
LAST-MODIFIED:20260209T222306Z
UID:6392-1772272800-1772280000@wirare.org
SUMMARY:Rare Disease Children's Museum Event
DESCRIPTION:Rare Disease Children’s Museum Event \nFebruary 28th 10 am – Noon CST
URL:https://wirare.org/event/rare-disease-childrens-museum-event/
LOCATION:Madison Children’s Museum\, 100 N Hamilton St\, Madison\, WI\, United States
CATEGORIES:In-person
ORGANIZER;CN="WI Rare":MAILTO:anna@wirare.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260228T140000
DTEND;TZID=America/Chicago:20260228T200000
DTSTAMP:20260414T175035
CREATED:20260209T222918Z
LAST-MODIFIED:20260210T172240Z
UID:6398-1772287200-1772308800@wirare.org
SUMMARY:Zebra Hop IPA
DESCRIPTION:Zebra Hop IPA at Component Brewing February 28\, 2:00 pm CST
URL:https://wirare.org/event/zebra-hop-ipa/
LOCATION:Component Brewing\, 2018 S 1st St #169\, Milwaukee\, WI\, United States
CATEGORIES:In-person
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